{"id":1437,"date":"2026-08-18T20:12:03","date_gmt":"2026-08-18T20:12:03","guid":{"rendered":"https:\/\/indigenousclinicaltrialsnav.ca\/quest-ce-que-locas-et-pourquoi-cest-important-pour-les-patients-metis\/"},"modified":"2026-10-22T18:38:30","modified_gmt":"2026-10-22T18:38:30","slug":"quest-ce-que-locas-et-pourquoi-cest-important-pour-les-patients-metis","status":"publish","type":"post","link":"https:\/\/indigenousclinicaltrialsnav.ca\/fr\/quest-ce-que-locas-et-pourquoi-cest-important-pour-les-patients-metis\/","title":{"rendered":"Qu\u2019est-ce que l\u2019OCAS et pourquoi c\u2019est important pour les patients m\u00e9tis"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">L\u2019OCAS est approuv\u00e9 par la Manitoba M\u00e9tis Federation comme cadre de gouvernance des donn\u00e9es m\u00e9tisses. Bien qu\u2019il partage une ressemblance structurelle avec les principes OCAP\u00ae des Premi\u00e8res Nations, l\u2019OCAS a \u00e9t\u00e9 d\u00e9velopp\u00e9 sp\u00e9cifiquement pour refl\u00e9ter la gouvernance, l\u2019histoire et les priorit\u00e9s m\u00e9tisses \u2014 il existe en propre, et non comme une adaptation m\u00e9tisse de l\u2019OCAP\u00ae.<\/p>\n\n<h2 class=\"wp-block-heading\">Les quatre principes, en langage clair<\/h2>\n\n<h3 class=\"wp-block-heading\"><strong>Propri\u00e9t\u00e9<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">La propri\u00e9t\u00e9 renvoie \u00e0 la possession juridique des donn\u00e9es \u2014 \u00e9tablir clairement que les informations concernant les personnes et communaut\u00e9s m\u00e9tisses appartiennent \u00e0 ces communaut\u00e9s.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Contr\u00f4le<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">Le contr\u00f4le est li\u00e9 \u00e0 l\u2019autorit\u00e9 d\u00e9cisionnelle sur l\u2019ensemble du cycle de vie des donn\u00e9es : comment elles sont collect\u00e9es, stock\u00e9es et ce qu\u2019il en advient au fil du temps. Cette autorit\u00e9 revient aux communaut\u00e9s m\u00e9tisses.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>Acc\u00e8s<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">L\u2019acc\u00e8s porte sur la question de savoir si l\u2019utilisation des donn\u00e9es apporte un r\u00e9el b\u00e9n\u00e9fice aux personnes m\u00e9tisses \u2014 pas seulement qui est autoris\u00e9 \u00e0 les consulter, mais si elles servent r\u00e9ellement la communaut\u00e9 dont elles proviennent.<\/p>\n\n<h3 class=\"wp-block-heading\"><strong>G\u00e9rance responsable<\/strong><\/h3>\n\n<p class=\"wp-block-paragraph\">La g\u00e9rance responsable d\u00e9signe une planification et une gestion continues des donn\u00e9es qui placent les int\u00e9r\u00eats des M\u00e9tis au centre \u2014 consid\u00e9rant la gestion des donn\u00e9es comme une responsabilit\u00e9 continue plut\u00f4t qu\u2019une transaction ponctuelle.<\/p>\n\n<h2 class=\"wp-block-heading\">Comment le R\u00e9seau de parcours autochtone des ECC applique l\u2019OCAS<\/h2>\n\n<p class=\"wp-block-paragraph\">Le parcours m\u00e9tis au sein du R\u00e9seau de parcours autochtone des ECC a \u00e9t\u00e9 construit en tenant compte de ces principes. Pour les patients m\u00e9tis qui \u00e9valuent s\u2019ils souhaitent participer \u00e0 un essai clinique, l\u2019OCAS repr\u00e9sente notre engagement \u00e0 :<\/p>\n\n<ul class=\"wp-block-list\">\n<li>Une propri\u00e9t\u00e9 m\u00e9tisse claire des informations que les patients et les communaut\u00e9s partagent avec nous<\/li>\n\n\n\n<li>Un contr\u00f4le \u00e9clair\u00e9 par la communaut\u00e9 sur la fa\u00e7on dont ces informations sont utilis\u00e9es<\/li>\n\n\n\n<li>Garantir que l\u2019acc\u00e8s aux donn\u00e9es sert les int\u00e9r\u00eats des personnes m\u00e9tisses, et non seulement la commodit\u00e9 administrative<\/li>\n\n\n\n<li>Une g\u00e9rance responsable continue plut\u00f4t qu\u2019une simple case \u00e0 cocher de consentement ponctuel<\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">\u00c0 mesure que ce parcours se d\u00e9veloppe, nous nous engageons \u00e0 refl\u00e9ter l\u2019OCAS dans la conception m\u00eame de notre communication avec les patients et familles m\u00e9tis et de la conservation de leurs informations \u2014 et non seulement comme une d\u00e9claration de principe.<\/p>\n\n<p class=\"wp-block-paragraph\"><a href=\"http:\/\/chrome-extension:\/\/efaidnbmnnnibpcajpcglclefindmkaj\/https:\/\/umanitoba.ca\/ongomiizwin\/sites\/ongomiizwin\/files\/2021-04\/UofM_Framework_Report_web.pdf\">En savoir plus<\/a><\/p>\n\n<p class=\"wp-block-paragraph\">Les principes de l\u2019OCAS sont approuv\u00e9s par la Manitoba M\u00e9tis Federation.<\/p>\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>OCAS signifie Propri\u00e9t\u00e9, Contr\u00f4le, Acc\u00e8s et G\u00e9rance \u2014 le cadre que les communaut\u00e9s m\u00e9tisses utilisent pour gouverner leurs propres informations. Voici ce que chaque principe signifie concr\u00e8tement et comment il fa\u00e7onne notre travail avec les patients et familles m\u00e9tis tout au long de ce parcours.<\/p>\n","protected":false},"author":1,"featured_media":1438,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[31,32],"tags":[],"class_list":["post-1437","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-fr","category-ressources"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Qu\u2019est-ce que l\u2019OCAS et pourquoi c\u2019est important pour les patients m\u00e9tis - Parcours Autochtones<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/indigenousclinicaltrialsnav.ca\/fr\/quest-ce-que-locas-et-pourquoi-cest-important-pour-les-patients-metis\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Qu\u2019est-ce que l\u2019OCAS et pourquoi c\u2019est important pour les patients m\u00e9tis - Parcours Autochtones\" \/>\n<meta property=\"og:description\" content=\"OCAS signifie Propri\u00e9t\u00e9, Contr\u00f4le, Acc\u00e8s et G\u00e9rance \u2014 le cadre que les communaut\u00e9s m\u00e9tisses utilisent pour gouverner leurs propres informations. 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