{"id":1434,"date":"2026-08-18T20:10:32","date_gmt":"2026-08-18T20:10:32","guid":{"rendered":"https:\/\/indigenousclinicaltrialsnav.ca\/une-approche-fondee-sur-les-distinctions-pour-lequite-en-sante\/"},"modified":"2026-10-22T18:38:24","modified_gmt":"2026-10-22T18:38:24","slug":"une-approche-fondee-sur-les-distinctions-pour-lequite-en-sante","status":"publish","type":"post","link":"https:\/\/indigenousclinicaltrialsnav.ca\/fr\/une-approche-fondee-sur-les-distinctions-pour-lequite-en-sante\/","title":{"rendered":"Une approche fond\u00e9e sur les distinctions pour l\u2019\u00e9quit\u00e9 en sant\u00e9"},"content":{"rendered":"\n<h2 class=\"wp-block-heading\">Pourquoi nous n\u2019avons pas commenc\u00e9 par un parcours \u00ab autochtone \u00bb unique<\/h2>\n\n<p class=\"wp-block-paragraph\">Sur le papier, il aurait \u00e9t\u00e9 plus simple de concevoir un seul parcours destin\u00e9 \u00e0 servir tous les patients autochtones \u00e0 la fois. Nous ne l\u2019avons pas fait, et la raison tient \u00e0 une seule id\u00e9e : une approche fond\u00e9e sur les distinctions.<\/p>\n\n<p class=\"wp-block-paragraph\">Les peuples des Premi\u00e8res Nations, m\u00e9tis et inuit ont chacun leurs propres histoires, structures de gouvernance, pratiques culturelles et relations avec le syst\u00e8me de sant\u00e9. Un programme \u00ab autochtone \u00bb g\u00e9n\u00e9rique risque d\u2019aplanir ces diff\u00e9rences \u2014 en traitant des nations distinctes comme un groupe indiff\u00e9renci\u00e9, ce qui constitue en soi une forme d\u2019effacement. Ainsi, m\u00eame si l\u2019objectif ultime du Parcours autochtone est de servir l\u2019ensemble des Peuples autochtones, nous avons fait le choix d\u00e9lib\u00e9r\u00e9 de commencer par un focus d\u00e9di\u00e9 sur la Nation m\u00e9tisse, puis de d\u00e9velopper progressivement des parcours pour les Premi\u00e8res Nations et les Inuit, chacun fa\u00e7onn\u00e9 par sa propre communaut\u00e9.<\/p>\n\n<h2 class=\"wp-block-heading\">D\u2019o\u00f9 vient ce choix<\/h2>\n\n<p class=\"wp-block-paragraph\">Ce n\u2019\u00e9tait pas une d\u00e9cision prise de fa\u00e7on abstraite. Elle est n\u00e9e directement de la relation \u2014 plus pr\u00e9cis\u00e9ment, d\u2019un partenariat significatif avec Sally Nystrom, citoyenne m\u00e9tisse de la Rivi\u00e8re-Rouge, partenaire patiente et survivante du cancer \u00e0 Winnipeg, qui participe \u00e0 ce travail depuis ses d\u00e9buts. L\u2019exp\u00e9rience et le point de vue de Sally ont mis en \u00e9vidence quelque chose que l\u2019\u00e9quipe du CTN devait entendre clairement : une approche g\u00e9n\u00e9rique, panautochtone, n\u2019\u00e9tait pas appropri\u00e9e.<\/p>\n\n<p class=\"wp-block-paragraph\">Ces orientations ont fa\u00e7onn\u00e9 l\u2019ensemble de la structure du programme. Les obstacles propres aux M\u00e9tis sont souvent n\u00e9glig\u00e9s dans les soins du cancer \u2014 notamment le fait que de nombreux patients m\u00e9tis sont exclus du programme des Services de sant\u00e9 non assur\u00e9s (SSNA\/NIHB), une prestation f\u00e9d\u00e9rale que beaucoup de personnes supposent couvrir tous les patients autochtones, mais qui ne s\u2019applique pas de la m\u00eame mani\u00e8re aux communaut\u00e9s m\u00e9tisses. Des obstacles comme celui-ci n\u2019apparaissent tout simplement pas dans un programme con\u00e7u autour d\u2019un seul profil g\u00e9n\u00e9ralis\u00e9 de \u00ab patient autochtone \u00bb.<\/p>\n\n<h2 class=\"wp-block-heading\">Ce que signifie concr\u00e8tement une approche fond\u00e9e sur les distinctions<\/h2>\n\n<ul class=\"wp-block-list\">\n<li>Adopter une approche fond\u00e9e sur les distinctions ne vise pas seulement \u00e0 offrir une meilleure information \u2014 il s\u2019agit aussi de responsabilit\u00e9. Cela signifie :<\/li>\n\n\n\n<li>\u00c9tablir des relations directement avec les patients, navigateurs et d\u00e9tenteurs de savoirs de chaque nation, plut\u00f4t que de pr\u00e9sumer de solutions communes<\/li>\n\n\n\n<li>\u00c9couter attentivement les besoins propres \u00e0 chaque communaut\u00e9, m\u00eame si cela implique un d\u00e9ploiement plus lent et plus r\u00e9fl\u00e9chi<\/li>\n\n\n\n<li>Reconna\u00eetre que les cadres de gouvernance sont distincts plut\u00f4t qu\u2019interchangeables \u2014 par exemple, appliquer l\u2019OCAP\u00ae pour les donn\u00e9es des Premi\u00e8res Nations et l\u2019OCAS pour les donn\u00e9es m\u00e9tisses, plut\u00f4t qu\u2019une politique de donn\u00e9es unique<\/li>\n\n\n\n<li>Permettre \u00e0 chaque parcours d\u2019\u00eatre fa\u00e7onn\u00e9 et dirig\u00e9 par la communaut\u00e9 qu\u2019il sert, au lieu d\u2019adapter tel quel un mod\u00e8le d\u2019abord m\u00e9tis pour les patients des Premi\u00e8res Nations ou inuit<\/li>\n<\/ul>\n\n<p class=\"wp-block-paragraph\">Comme le formule une r\u00e9flexion directrice du programme : le choix de commencer par une communaut\u00e9 ne consiste pas \u00e0 privil\u00e9gier un groupe plut\u00f4t qu\u2019un autre. Il s\u2019agit d\u2019honorer les relations qui se construisent, d\u2019\u00e9couter attentivement les besoins propres \u00e0 chaque communaut\u00e9 et de demeurer redevable envers les personnes avec lesquelles le programme est en partenariat.<\/p>\n\n<h2 class=\"wp-block-heading\">La suite<\/h2>\n\n<p class=\"wp-block-paragraph\">Le Parcours m\u00e9tis demeure aujourd\u2019hui la composante la plus d\u00e9velopp\u00e9e de ce travail, mais il n\u2019a jamais \u00e9t\u00e9 cens\u00e9 repr\u00e9senter l\u2019ensemble. \u00c0 mesure que le programme m\u00fbrit, des parcours propres aux Premi\u00e8res Nations et aux Inuit sont d\u00e9velopp\u00e9s \u00e0 leur tour \u2014 chacun ancr\u00e9 dans son propre processus de consultation, ses propres principes de gouvernance et son propre leadership communautaire, plut\u00f4t qu\u2019un simple copier-coller de ce qui a pr\u00e9c\u00e9d\u00e9.<\/p>\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Une explication des raisons pour lesquelles le programme consid\u00e8re les communaut\u00e9s m\u00e9tisses, des Premi\u00e8res Nations et inuites comme distinctes, plut\u00f4t que d\u2019appliquer une approche panautochtone unique, et de ce que cela implique pour la fa\u00e7on dont le parcours est con\u00e7u et d\u00e9ploy\u00e9.<\/p>\n","protected":false},"author":1,"featured_media":1435,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[31,32],"tags":[],"class_list":["post-1434","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-fr","category-ressources"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Une approche fond\u00e9e sur les distinctions pour l\u2019\u00e9quit\u00e9 en sant\u00e9 - Parcours Autochtones<\/title>\n<meta name=\"robots\" content=\"index, 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